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My friend's side effects of chemotherapy....tips?
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LAGrunthaner Premium Member
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PostPosted: Wed Nov 29, 2023 4:04 am    Post subject: My friend's side effects of chemotherapy....tips? Reply with quote

Over the last 2 weeks I have been to 2 funerals, friend and family due to that fucking dreadful "cancer". And once again only 1 week ago another friend with cancer and I'm trying to help in any way I can. Thankfully today I received a reply (exhaustion and distance slows communication) that the side effects are making it very difficult. I thought it can't hurt to hear what meds may lesson the effects of chemo as doctors are using the trial and error method. The side effects are exactly what you would expect with very high doses of chemo. My friend is trying to stay out of the hospital.

BTW my cat pictures and cartoons have helped a little. Very Happy
The glass must always be half full.
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PostPosted: Wed Nov 29, 2023 5:45 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Pot ,helps Wink
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PostPosted: Wed Nov 29, 2023 6:40 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Sorry for your friend

My advice? (this is based on personal experience) would be determine if the cancer is in fact able to be treated into remission. If not, live your best life for your remaining time.

Your friend should have pain care nurses to help with the side effects. I've had too many people in my life live a poor existence on a chemical cocktail that made them feel like garbage, only to get off of it when "it wasn't working" to go directly into a home. Point being, they could have felt good for the last 3-6 months if they were going to end up in a home anyway.

Basically, they could be wasting the best time to feel good/do things.
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PostPosted: Wed Nov 29, 2023 6:47 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

skills@eurocarsplus wrote:
Sorry for your friend

My advice? (this is based on personal experience) would be determine if the cancer is in fact able to be treated into remission. If not, live your best life for your remaining time.

Your friend should have pain care nurses to help with the side effects. I've had too many people in my life live a poor existence on a chemical cocktail that made them feel like garbage, only to get off of it when "it wasn't working" to go directly into a home. Point being, they could have felt good for the last 3-6 months if they were going to end up in a home anyway.

Basically, they could be wasting the best time to feel good/do things.


Excellent advice.

If you have time, read Being Mortal by Atul Gawande. It deals with this very topic, looking at a variety of cases through the eyes of this doctor, other doctors, and their patients. Home hospice seems to be the best compromise, allowing cancer patients to live out the time they have left as comfortably as possible, at home with family.
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PostPosted: Wed Nov 29, 2023 2:40 pm    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

skills@eurocarsplus wrote:
Sorry for your friend

My advice? (this is based on personal experience) would be determine if the cancer is in fact able to be treated into remission. If not, live your best life for your remaining time.

Your friend should have pain care nurses to help with the side effects. I've had too many people in my life live a poor existence on a chemical cocktail that made them feel like garbage, only to get off of it when "it wasn't working" to go directly into a home. Point being, they could have felt good for the last 3-6 months if they were going to end up in a home anyway.

Basically, they could be wasting the best time to feel good/do things.


Yep, agreed. Having lost family and having family with cancer, sometimes the side effects are worse than the (maybe) cure. There's nothing you can do but support them during this time - nothing will make them feel physically better. Mentally, keep their spirits up by whatever means you can.
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PostPosted: Thu Nov 30, 2023 4:16 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Yes skills@eurocarsplus, I agree regarding "quality of life" and I wish I knew the proper way to encourage that. Buying time with chemotherapy is only good if this extreme suffering is not in the equation. Chemo suffering is horrible and I suppose my job is to distract, encourage and be hopeful without causing any further suffering. Yes, scottyrocks, I will get that book "Being Mortal by Atul Gawande". I will assume it will help me, help them.

madmike, funny I never thought my friend try cannabis. A colleague said the same yesterday. I am going to suggest that today. Even mild CBD gummies have helped people suffering and encourage their appetite.

Thank you, skills@eurocarsplus, "live your best life for your remaining time".

That glass half full must be the quality of life.
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PostPosted: Thu Nov 30, 2023 7:42 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

I have little to add other than to say keep on with the whimsy (cat pictures and cartoons) as laughter is the best antidote to adversity.

check out the kiffness and his cat music on youtube (although cockatiel-o is my fave)
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PostPosted: Thu Nov 30, 2023 8:02 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Back about 1971 a good friend of ours (mid 30s) was having various abdominal difficulties that made no sense to the Dr so he put in a zipper to see what was going on. Well he saw more than he bargained for, the man's whole lower abdomen was full of cancer so he zipped him back up, told him to get his affairs in order, you have about 6 weeks left at best and see you in the cancer clinic in a week.

He went to the clinic, took 3 rounds of chemo treatment, felt so incredibly horrible that he told them "If this is how I am going to feel for the last 5 weeks of my life, I am done here!" He checked himself out and went home!

He eventually recovered on his own, went back to work, raised his 2 small children and we put him in the ground about 5 years ago . His 6 weeks turned into almost 50 more years!
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PostPosted: Thu Nov 30, 2023 9:21 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

there is nothing funny about the healing and relieving effects of cannabis during chemo - pretty sad that it's not more widely used / suggested / prescribed. Gummies are ok, tiniticure and vapor is faster...

the hospital your friend goes to is key - they need to be great at fighting cancer, not just the local hospital being overseen by your local PCP. Cancer specialist hospitals exist and are great. MD Anderson in Houston is the # 1 Cancer hospital in the US. Mayo clinic, Kettering Cancer center, etc are great as well

best of luck to your friend - she will need it but she can beat it with everyone's help
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PostPosted: Thu Nov 30, 2023 12:45 pm    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

@LAGrunthaner ...

Cancer is a M-F !

So sorry to hear this.
Chemo is an insipid thing - they need it to be powerful enuff to rid the ailment but not rid the patient.

I know a woman that has been stage4-ed & is in a maintenance phase & has been for 4.5yrs. Somehow she is positive & upbeat. Perhaps I don't have all the info & she covers well. She does look good in her wig. I change the batteries in her smoke detectors yearly & don't charge her even tho she lives 32 miles away. She insists on $20 for gas.

I've also heard of THC calming the nausea & etc side affects.

Sending positive thoughts, vibes, & prayers to you & your friend as it affects more than the patient.

Warm wishes ... stay safe

jinx

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PostPosted: Thu Nov 30, 2023 3:04 pm    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Not sure its the CBD that stimulates appetite, i think its the funner THC.
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PostPosted: Thu Nov 30, 2023 8:05 pm    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

The best cannabis delivery system is suppositories ( 80%) bio-availability. Super high concentrations like RSO ( Rick Simpson Oil ) and Phoenix Tears have a very good track record for some. The patient will sleep for long periods and that seems to be the only , medically proven, magic. The body heals primarily during sleep cycles, which the patient is doubling. Can be used without contraindication in Chemo treatments.
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PostPosted: Thu Nov 30, 2023 9:25 pm    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

LAGrunthaner wrote:
Yes skills@eurocarsplus, I agree regarding "quality of life" and I wish I knew the proper way to encourage that. Buying time with chemotherapy is only good if this extreme suffering is not in the equation. Chemo suffering is horrible and I suppose my job is to distract, encourage and be hopeful without causing any further suffering. Yes, scottyrocks, I will get that book "Being Mortal by Atul Gawande". I will assume it will help me, help them.

madmike, funny I never thought my friend try cannabis. A colleague said the same yesterday. I am going to suggest that today. Even mild CBD gummies have helped people suffering and encourage their appetite.

Thank you, skills@eurocarsplus, "live your best life for your remaining time".

That glass half full must be the quality of life.


Here's my take for what it is or isn't worth:
After dealing with this with both my dad and mother- in- law from 2013 to July of 2016 when my MIL died... I saw the sudden onset neuropathy, then the "chemo brain" and then the self breaking bones and all the pain and agony... and each of them got roughly a month to 3 months beyond the prognosis of life expectancy had they done NOTHING. Instead my dad was miserable for 2 3/4 years and my MIL for 18 months. Dad had multiple myeloma, the MIL lymphoma. I think non Hodgkins but don't quote me.

If I happen to get something like very early stage prostate cancer that has a more than decent chance of a cure- then sure, I'd grin and bear it. It's a worthy gamble. Anything beyond that? Not just no... but FUCK NO. I'll go on a carrot juice and cannabis diet, take vitamins till I puke, but I will be happy and feel as good as I can till the end.

Your mileage may vary.

Very sorry about the situation. I sure wouldn't wish it on anyone.
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PostPosted: Fri Dec 01, 2023 12:46 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

My mom has had 4 bouts of cancer. The third one was non hodgekin's lymphoma and the doc gave her 2 years tops to live. That was 12 years ago.
She is a fighter and the toughest person I know, and she took whatever the Cancer Center recommended from chemo to hardcore trial drugs that all were very hard on her body. Throughout the whole time she would always have the attitude that she was going to kick cancers ass.

A few months ago she was feeling really bad and had to go for tests and as it turned out the non hodgekin's lymphoma was no longer around but it was leukemia now and there was no chance at remission this time only the chance to extend your life for 12 months or so. My mom said F it give me the chemo or whatever it takes. Prognosis was no good and I saw my mom lose a lot of weight and be bed ridden at the hospital. It seemed like she was not going to escape the grimm reaper this time. Two weeks ago she went in for a bone marrow test to see if the chemo was doing anything and to the amazement of the Cancer Doc the cancer is in remission. She's doing exercises now at a rehab facility and looking forward to coming home soon.

I have never seen my mom in pain and suffering like the way I saw with this last battle, and it made me think about a lot of things. I reached out to some friends and discussed their loss of loved ones to cancer. One of my very good friends who lost his mom provided me with some sound advice. He told me his mom was going through chemo and trying everything available to her and he would drive from No CA to SoCal every weekend to help out. One weekend he got there and his mom told him she is done getting treatment. His immediate reaction was there has to be other options etc and he was kind of po'd. It took him some time to understand that everyone has their threshold and you have to respect their decision if it comes to that.

So support your friend with cancer by just being there for them and respect their decisions on how they want to care for themselves. There are many forms of cannibis that can help ease pain and provide comfort and increase appetite during treatment and hopefully they get cured or go into remission and live a happy quality life.

F Cancer


Last edited by 74 Thing on Fri Dec 01, 2023 4:50 pm; edited 1 time in total
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PostPosted: Fri Dec 01, 2023 6:00 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

74 Thing wrote:
So support your friend with cancer by just being there for them and respect their decisions on how they want to care for themselves.


^^^
This. Sometimes the support people feel the need to say something. Just being there is often times enough.
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PostPosted: Fri Dec 01, 2023 8:45 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Short of turning your friend into a pot-head, encourage to eat even when not feeling eating. Loss of appetite is a big deal. If you do not eat, you die -

You can be on all sort of meds but if you do not eat, all sorts of other bad things show up. Bring in lots of fruits as the taste buds are all different during the treatment.


I would not encourage to turn the person into a user -just cause 'it helps'. Petesakes. Alcoholics say too it helps them get thru the day. Rolling Eyes
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PostPosted: Fri Dec 01, 2023 9:23 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

That was not nice. Not turning your friend into a pothead is a different thing than offering possible therapies with proven benefit, at least trying to find comfort. Your moral views notwithstanding, smh.
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PostPosted: Sat Dec 02, 2023 9:15 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

this site has a collection of short sound recordings from around the world and is a regular haunt of mine. pop on headphones, close your eyes and take a healing break from the everyday. from katydids in the moonlight, the hubbub of a viennese coffee house to the sound of alpine meadows it's all here to dive into

https://fieldrecordings.xyz/
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PostPosted: Sat Dec 02, 2023 5:19 pm    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

My dad had Stage 4 non-Hodgkins Lymphoma at ~63 and beat it and lived to 84 before he died of something else.

Of course everyone's experience is different, but he had an amazingly positive attitude - and this was someone who wasn't normally positive. He also had the support of good friends who drove him to and from every single appointment (Maine to Boston and back). My mom took it upon herself to make sure he maintained his weight and cooked 3 meals every day for months - though he did lose 40lbs or so.

I am 100% a believer in science, but I really think attitude and a solid support network make a huge difference.
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PostPosted: Tue Dec 05, 2023 3:54 am    Post subject: Re: My friend's side effects of chemotherapy....tips? Reply with quote

Thank you all, for these great suggestions. The personal stories are very inspiring toward hope. My friend has been in the hospital since my last posted update. Doctors are trying to get the effects under control, it is difficult.

The next step is trying to get acupuncture although that team located in the hospital doesn’t treat at the bedside. My dear kind friend is too weak to get to that department. All I can do is continue being positive, send humorous comics and always listen.
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